Thalassemia is a group of autosomal recessive genetic diseases caused by mutations
in globin. The aim of this study was to assess caregivers’ empowerment regarding care of their
children with thalassemia. Research design: Descriptive research design was utilized in this study.
Setting: This study was carried out at Out-Patient Clinic at Benha Specialized Pediatric Hospital at
Benha City. Sample: Purposive sample was used in this study; the total sample included 62 caregivers.
Tools: Two tools were used I): An interviewing questionnaire which consisted of four parts to assess
a): Demographic characteristics of caregivers and personal data of thalassemia children, b): Medical
characteristics of children, c): Knowledge of caregivers regarding thalassemia and empowerment and,
D): Reported practices of caregivers regarding care of their children II): Family empowerment scale to
assess how cregivers deal with children problems, utilize services and participate in the community.
Results: 56.5% of caregivers aged from 28 -38 years, 66.1 % of them had secondary education. 54.8%
of the studied caregivers had average total knowledge regarding thalassemia and empowerment, 62.9%
of caregivers had satisfactory reported practices regarding care of thalassemia children, and 46.8% of
the studied caregivers had low total family empowerment level regarding thalassemia. Conclusion:
There was a highly positive correlation between studied caregivers’ total knowledge, total
empowerment and their total reported practices regarding thalassemia. Recommendations: Health
educational programs should be developed and implemented for studied caregivers to increase their
awareness regarding prenatal counseling, early detection of thalassemia and care of thalassemia
children. |
